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Support Groups & Maternal-Fetal Centres

 

There are some support groups for parents who are currently expecting children with a poor or fatal diagnosis. Those services vary from State to State and from Country to Country.

However, we have listed some groups below. If you know of any other ones which should be listed on this page, please contact us to let us know.

 

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Australia

 

SAFDA Victoria(Support After Fetal Diagnosis of Abnormality)

www.gsnv.org.au/SAFDA

8345 2180

 

SIDS and Kids Victoria

www.sidsandkidsvic.org

9822 9611  

1300 308 307 (24 hour grief support)

 

SANDS Australia

1300 072 637 (support)

www.sands.org.au

 

Bonnie Babes

1300 266 643 (grief counselling)

www.bbf.org.au

 

Very Special Kids

1800 888 875 (free call)

www.vsk.org.au

 

Genetic Counselling Service, Royal Women's Hospital

www.thewomens.org.au/GeneticCounsellingService

8345 2180

 

Genetics, Monash Medical Centre

www.southernhealth.org.au

9594 2026

 

Clinical Genetics Service, Mercy Hospital for Women

www.mercy.com.au

8458 4250

 

Fetal Diagnosis Centre Royal Women's Hospital, Brisbane

Royal Women's Hospital

Brisbane,QLD.

07 3636 0840

RBWH_CAPC@health.qld.gov.au

 

OzMOST

OzMOST is an internet based peer support group for families in Australia and New Zealand raising the sole surviving child of a multiple pregnancy.

www.littleonesloved.com.au

 

Overseas

 

Antenatal Results Choices (UK)

ARC is a national charity, which provides non-directive support and information to parents throughout the antenatal testing process. Their role is to help parents arrive at the most appropriate decision for them in the context of their family life.   www.arc-uk.org

Perinatal Hospice (USA)

A website offering resources for mothers who wish to continue their pregnancy despite a poor prenatal diagnosis. Facilitates the creation of a "Perinatal Hospice frame of mind" through a peaceful approach.  Links to useful books for families as well as US Perinatal Hospices. www.perinatalhospice.org

 

Be Not Afraid (USA)

Benotafraid.net is an online outreach to parents who have received a poor or difficult prenatal diagnosis. The family stories, articles, and links within this site are presented as a resource for those who may have been asked to choose between terminating a pregnancy and continuing on despite the diagnosis. The benotafraid.net families faced the same decision and chose not to terminate. By sharing their experiences, they offer encouragement to those who may be afraid to continue on.

http://www.benotafraid.net/default.asp

 

A heart- breaking choice (USA)

For those parents who choose to interrupt their pregnancies after poor prenatal diagnosis, they hope to create a safe haven of encouragement and validation.

http://www.aheartbreakingchoice.net

 

 

 

 

DISCLAIMER:

The PDS Australia website, its content and any services offered to anyone are provided for informational purposes only. None of the foregoing is a substitute for professional medical advice, examination, diagnosis, or treatment. Always seek the advice of a Doctor or Mental Health Clinician  or other qualified healthcare provider with any questions you may have regarding pregnancy or grief and loss issues. Never disregard professional medical advice or delay in seeking it because of something you have read on the PDS Australia Site.